Steve Weber's kidney journey

A little hope.
A lot of life
left to live.

I'm Steve Weber, and I'm searching for a living kidney donor.

Steve Weber smiling outdoors with his wife and three children
Our whole world. ♡

I'm a husband, a father of 4-year-old twins and a 2-year-old, a business owner, and have been living with IgA nephropathy for 33 years. With my kidney function declining, we're now taking the first steps toward a transplant, hoping to get there before I ever need dialysis.

We're putting our story into the world and trusting God that it finds the right person. No pressure or obligation. Just an open door.

A confidential first conversation—not a commitment to donate. Rush handles questions, screening, and evaluation.

Understanding the diagnosis

What is IgA nephropathy?

A look at the kidney disease behind my transplant journey.

IgA nephropathy is a chronic kidney disease that damages the filters in the kidneys.

IgA is an antibody that all of our bodies naturally produce to help fight infections. In my case, my body makes too much of an abnormal form of IgA. Other antibodies and proteins attach to it, forming clumps that collect in the tiny filters inside my kidneys. Over time, that buildup causes inflammation and scarring, making it harder for my kidneys to filter waste from my blood.

I'm not on dialysis, and I hope to never be. My kidney function has had its ups and downs, and we're doing everything we can to stay ahead of what comes next. A kidney from a living donor offers the best opportunity for a successful transplant and more healthy years with my family.

I don't want anyone to feel they owe me anything. We are simply putting our story into the world and trusting God that it finds the right person. My wife, our three children, and I are deeply grateful for every prayer, every shared link, and every kind word.

Faith, family, and hope are carrying us through this.

Understanding my kidney function

Why I'm looking for a kidney now.

eGFR is a number doctors use to estimate how well the kidneys filter waste from the blood. Generally, a higher number means better filtering. It's not a percentage of kidney function.

For adults ages 40 to 49, the average eGFR is about 99. My latest reported value is 24, measured while I had a cold. Even if my next reading returns to my recent baseline around 26, that is still within stage 4 chronic kidney disease. That helps explain why we're beginning the donor search now, before I need dialysis, since finding a compatible donor and completing evaluation takes time. An eGFR of 20 or lower is an important transplant milestone: eligible adults can begin accruing waiting time for a deceased-donor kidney, even before dialysis. The transplant team determines individual eligibility.

My hope is to receive a living donor kidney before I ever need dialysis. Finding a donor early gives us time for careful testing and planning.

A closer look at eGFR

mL/min/1.73 m²
Average at age 40–49National Kidney Foundation99
My latest reported eGFRSteve Weber24
0eGFR scale (not percent)100
20
Transplant waitlist milestone

At an eGFR of 20 or below, eligible adults can begin accruing waiting time for a deceased-donor kidney. It's not an automatic transplant date. A living donor transplant can be planned based on medical needs.

Numbers shown are eGFR estimates, not a percentage of kidney function. Age-group average: National Kidney Foundation. Waiting-time policy: HRSA / OPTN. My value reflects the most recent result I've shared, not a live medical reading.

My actual eGFR lab results

December 2023 – October 2026. These are actual reported lab readings, not an estimated or normalized trend.

Graph of actual eGFR lab results from December 2023 through October 2026. Values fluctuate between 18 and 29, with a recent cluster near 25 to 27 and the latest result at 24.
These individual lab results show fluctuations rather than a smooth decline. My October 2026 reading of 24 was measured while I had a cold; my recent baseline has generally been closer to 26. Swipe across to view the full chart.
Latest from Steve · October 26, 2026

A clearer path forward.

We met with the transplant team at Rush and left feeling much more comfortable about the process and what comes next.

There are still quite a few tests ahead for me. The team told us the full screening and evaluation typically takes about two months. Now we begin the search for a living kidney donor.

My latest reported eGFR is 24. That test was taken while I was fighting a cold, and I've noticed my numbers sometimes dip when I'm sick. My recent baseline has been closer to 26, and I'm hopeful my next result returns to that range. Even at 26, my kidney function is still in the stage 4 range, so we are pursuing transplant evaluation and the donor search now rather than waiting for dialysis. These are the most recent results I've chosen to share, not live lab readings. See my actual eGFR lab results ↗

We are grateful for every prayer and every person willing to share our story.

Help share our story ↓
It starts with a conversation

Curious about being a donor?

You don't have to decide anything today. Here's how to explore the possibility.

01

Reach out to Rush

Start with Rush's donor interest form or a phone call. You'll provide basic contact and health details so the team can explain next steps. Enter Steve Weber as the intended recipient.

02

Ask questions & get screened

The transplant team explains the process and, if appropriate, arranges health screening and tests. Your health and wishes come first.

03

Make your own choice

If donation is possible, it's entirely up to you whether to continue. You can change your mind at any time, and Rush protects your privacy.

Ask Rush About Living Donation ↗

A private inquiry, not a promise to donate. You can also call Rush at (312) 947-4438.

Official donor information

One call could begin something extraordinary.

All donor inquiries, testing, and medical decisions are handled by Rush Living Kidney Donor Transplant Services, not by our family.

When contacting Rush, please identify Steve Weber as the intended recipient. The interest form may ask for contact and preliminary health information; Rush's independent donor team determines the appropriate next steps. You do not need to tell our family that you inquired or are undergoing testing.

Open Rush's donor form ↗

Call (312) 947-4438
or (312) 947-GIFT

Rush's official website: Living Kidney Donor Transplant Services ↗

Other ways to help

Even sharing our story matters.

"We ask for your prayers, that God's hand remains over every step, and that this story reaches the person who might be the right match."

Donation isn't right for everyone. A prayer, a conversation, or sharing this page can help our story travel farther than we ever could on our own.